Many of my friends and family have asked me how I am currently doing and want to know more about Sarcoidosis. So this post is for all of you who would like to know what I have and where I am at in this process as well as any others who might have this disease and want to know what is working for me. When I was first given this diagnosis I had never heard of it nor could even pronounce it (Sar-Coi-Do-SIs). Since then with the help of my amazing husband and very supportive family I have started to build a solid team of professionals to help me with this journey. There is very little known what causes it, and nothing has been found to cure it. They believe it is in the auto-immune family but have been unable to be for sure.
I have attached to the upper right corner of this blog a Strength quote that if you click on it will take you to the most comprehensive article on Sarcoidosis. It is the best informative article I have found.
Sarcoidosis is a disease that basically likes to attack and destroy your organs. Most people with sarcoidosis will have it in there lungs but not all. It is in my lungs and my lymph system. I have granulomas in my lungs to numerous to count (as per the CT scan results). I have chest and upper back pain from this. The lymph nodes in the center of my chest are enlarged and create a great deal of pain as well. Because this disease is flared by inflammation I have completely changed my diet to not allow any inflammatory foods into my body. I have cut out gluten, dairy, eggs, all refined sugars, and pretty much anything that tastes good! haha! (The good news: it is a great weight loss program) LOL!
Right after my biopsy I tried some medication that my lung specialist put me on but the side effects and increased pain put me in bed for a month. Since then I have chosen to turn to a more natural approach to healing. It is a very slow process trying to find something that helps but It is wonderful to not have to take drugs that alter my personality or destroy any other part of my body in the process.
My adrenal glands are literally pooped out because they are trying to fight against these invaders in my lungs that wont go away, so my body has a very difficult times dealing with any type of stressor, good or bad. My body does not put out the hormones needed to counter with the stress so it responds with a breathing attack which I do not enjoy. But with the help of my family I am able to make it through the best I can.
So what is helping me currently: I am currently taking a DUB supplement from DUB nutrition which has been such a huge blessing. These supplements were made especially for auto-immune diseases. I can tell a huge difference in my pain level if I forget to take the anti-inflammatory supplements. I also am taking four different hormones in order to try and balance my endocrine system which is also being effected by this disease. My DO in Provo has me on a candida flush to rid my intestinal track of yeast overgrowth. They are hoping that this might help keep the immune system in check. He also has me on a drug that is trying to trick the immune system into thinking it has more endorphins which will lead it to trying to function normally.
Also, I have done restorative yoga, acupuncture, massage, and chiropractics to help with pain. And the best pain medicine I have found is my little grand baby IRELAND!! She really does make me feel great on difficult days!
So there you go...Just a little bit on what is going on with me. Thanks so much for all your love and concern!
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