It was hard for me to want to take care of myself today because I wanted to be with my Grandma in the hospital. She is now in ICU again and still not doing well. I love and care for her so much. My wonderful supporting husband and my personal RN daughter would not allow me to miss this appointment with this specialist. I am so thankful for there love and support in going with me and being by my side all day today.
This specialist has been following my disease since July. She has done a great deal of research and met with her colleagues in order to help find ways to manage this disease. She repeated the testing she did back in July. When she tested my blood she found a great deal of bacteria in my blood, very few white blood cells, and many red blood cells that are clumped together demonstrating lack of ability to hold oxygen. My blood also showed there is a lot of inflammation in my body. It was interesting that she saw micro-plasma pneumonia bacteria still in my blood from a sickness I had as a child. Other tests were done and it was evident that my adrenals are failing due to their constant battle trying to fight off a disease that cannot be fought. This explained the reasoning behind the four breathing attacks I have had over the past month which has led my family to almost calling 911. These attacks feel like I am suffocating and after the attack calms down I have a pins and needles feeling in my arms and legs due to lack of oxygen. I learned that because my body cannot produce the hormones needed to combat any type of stressor (good or bad) that this type of involuntary response to stress happens. It has happened four times this past month. Dealing with teens, stressful situations, getting upset, or even an action/dramatic movie has set me up for one of these attacks.
Learning more about why my body is doing the things its doing and finding what I can take naturally to help combat these things bring me a great deal of peace. This specialist increased my regimen of adrenal supplements, DUB supplements, anti-inflammatory and boswellia supplements. I am also to continue on my progesterone, testostorone, DHEA, and estrogen to help boost the endocrine system that is also taking a huge hit from this disease. Today we added the heavy metal Beryllium in small doses which has been shown to possible help diseases similar to Sarcoidosis.
I also learned today that because I have very few white blood cells my body cannot fight off any type of cold or sickness. I guess me and Ireland will be hanging out a lot this winter at home together!! YAY! More time with BABY! That is definitely a bonus!
Look at those Kissing Cheeks!
She is definitely the little ray of sunshine we need in our family right now!
As we were on our way home I really wanted to see my grandma one more time, I know my daughter my son-in-law, and my hubby were not crazy about me going into a hospital after such a rough day but they were kind enough to let me go love my grandma one more time.
I am so thankful for my family who is always there for me and helps me to remember to take care of myself so I can be around for them.
I am also so grateful for the many close friends who send texts or phone calls expressing their love and concern in my behalf. Your texts seem to come on days when I am struggling the most.
Thank you so much for always saying exactly what I need.
Life would be extremely hard with out a great support system!
Thanks to all my family and friends
I love you!
I am so sorry to hear you have had such a hard month! Glad you have a good support system! Ireland is such a cutie - love those chubby cheeks!
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