Sunday, May 31, 2015

Fun Loving side of Apostle L. Tom Perry

I found this video today of apostle L. Tom Perry. He passed away this last week. His funeral will be on Friday June 5, 2014.  He always had a smile on his face and was so positive. My hubby works on Temple Square as security for LDS Church Security. Kim describes him as a "spitfire!" I love that reference to this amazing apostle and wanted to share this fun-loving side of Elder L. Tom Perry. May he rest in peace!

WE LOVE YOU!

You will be missed!




Love that Fist BUMP!






Thursday, May 28, 2015

Blessing Others Lifts our own Heavy Load

I woke up today feeling more confident and courageous knowing I can make it through this protocol. First thing this morning I decided to get right back at Family History. My mom called me and wanted to come up and watch how to attach all the sources and finish adding Johanna Bertlesdatter and her two daughters to Family Search.

When she arrived I started showing her. We pulled up Johanne Berthelsdatter and then I showed her how important it is to check for possible duplicates of her name to make sure you merge any and all duplicate listings.

While searching for Johanne over these past couple weeks  I had never ran into this until today. As I searched for her duplicate (which I had done numerous times before) something different appeared today. I found a little boy by the name of Jens Christen who had a mother with her same name. I searched AOFORSIDE for the Danish birth records from 1795-1804 and found his birth in the 1800's. He only lived for 10 days. I was overcome with emotion as I not only had found the correct Johanna and her two daughters last week, but now I found  her only son. I was so happy and filled with once again the same gratitude I felt yesterday. I knew that we were being led by the spirit and it was truly a blessing we found that baby today.

Now this entire family can be not only together on our family tree, but most importantly sealed together and have all their work done in the temple.

After yesterdays experience in the temple parking lot, I realized today of the important work I must do. I realized as I do this the Lord will bless my life with added strength, determination, and courage to make it through these health challenges. I must not give up when times get tough and instead lose myself in the service of others.

Its not what You Do that is important when serving others is that YOU DO IT!


Wednesday, May 27, 2015

If you are on the Right Path…It will always be UPHILL!



Today, I would have to say was one of the most difficult days for me. The intolerable pain, fatigue, and sickness I felt with this new protocol started to really get me down. I know I am in it for the long haul and today I just really wanted to give up on this protocol altogether. I couldn't even imagine having to feel this sick and be in this much pain for  the next 2-5 years.

Not only is this protocol hard for me but even more difficult for my family. But one thing I have noticed, especially today, that when I keep a positive and happy outlook no matter how bad I feel,  my family seems to deal with things better.

But today was not that day. As we were eating dinner, I felt so horrible that I have to admit I was pretty onry. Not begin able to go out into the sun, or have the lights on in your house can make you feel alone and downright miserable. So tonight during dinner I was less than my chipper happy self. It did not take long for my up happy spirit to transfer to my hubby who then transferred that right back to me. The kids also felt the tension and every was uptight, all because of me!

I felt so done with this process and hated how useless I felt having to not be able to be the active, busy and fun person that I use to be. I decided to take a drive, I knew that would prove to flare me even more doing this, but I just had to get away even if it was just a short drive.

As I drove I cried. I felt as if life was handing me yet again another curve-ball and that it was up to me what I would do with it. I drove and found myself in the parking lot of the Oquirrh Mountaiin LDS Temple.

As I entered the temple ground I was worried because I knew I could not go inside due to the fluorescent lights that would cause me to have unbearable lung pain, breathing issues, and migraines!
I sat in my car hoping and waiting for the peace and strength and courage I needed to go in with this process!

As I sat in my car I listened to my some of my favorite spiritual songs and decided to  pray. I prayed  and prayed.  I prayed harder and with more intent than ever before! I asked the Lord to help me with all the struggles both physically and mentally that I was having.

During that prayer a name flashed before my mind. It was the name Berthelsdatter.  I was not even thinking about this 7th great grandma of mine.  This past month I have been researching Johanna Bertelsdatter and her family.   I have spent many hours trying to find this woman who belonged to our family. I discovered that she was born under Anne Berthelsdatter and later changed her name to Johanna.

During my research I found the documents I needed to prove that Joanne Bertlesdatter (Anne) was our 7x's great grandmother. I also was led to find her daughter who is our direct family line and have her sealed to her parents. I also found another baby girl of Joanne's that only lived one month after her birth that needed to be linked to our family as well.

 Right after her name flashed into my mind, I felt the strongest most loving appreciation that I have ever felt from her. I felt such a feeling of gratitude and love from her for finding and doing her work.

It was at that moment that I realized that although I have felt useless according to daily activities, I knew I was extremely important in God's eyes and now in her eyes as well! I felt such a reverence for the work of Family History and knew from this experience that what I am doing is extremely valuable and is exactly what I am supposed to be doing. I knew that if I did this most important work I would be blessed with the ability to make it through anything!

I would never have guessed in a million years  this would be my answer to my prayer. As I drove home I felt such a renewed peace, strength, courage, and self confidence knowing I  am a daughter of God and to continue to do Family History work. I know as I do this I will be blessed to make it through each and every one of my most difficult days!

Today I learned:



Sunday, May 24, 2015

You Raise Me Up

Well I would have to say that one of the hardest things to not be able to participate in is going to church. But I am so thankful that the young men of our ward can bring the sacrament to me today.

When I first started this protocol I thought it was going to be a lot easier than it actually is. I remember the Dr. warning me about one of the serious consequences  the sun and fluorescent lighting could cause.

However, for some reason I thought I was tougher than that and that it would not affect me. I guess I thought I was strong enough to take it by myself. BOY…once again I was wrong.  Yesterday I learned first hand after attempting to go to a store for the first time in two weeks that the doctors were right.

After 5 minutes of being under the florescent lighting, even with my special NOIR glasses on, the pain was intense. In fact, I even tried to tough it out just to see how bad it would get. Well it got pretty bad pretty fast and before long I asked my daughter to take me straight home.

We grabbed some lunch on the way home to my dark cave of a house. It was so nice mentally to get out in the daylight for the first time since May 4. However, the price I had to pay for doing that the rest of the day, was definitely not worth it.

I guess you could  say I had to see for myself just what the lights would do to me and not just take someones word for it! OKAY!! Now I know… I will listen and believe what the Marshall Protocal said would happen! haha  I guess that is what I get with such a stubborn personality!


So church is going to be a no-go for me and today I decided that the three hours I would be at church I am going to focus on reading, studying, and listening to conference talks, church magazines, and the scriptures. My hope is that I can continue to find strength and peace through this trial.

Today I found an amazing talk in the June 2015 Ensign. It is called Trusting in the Assurances of the Lord. This talk really helped me be reminded how no matter what we are going through in our lives the Lord will deliver us. It might not be the taking away of our trials but that He will give us the strength we need to deliver ourselves!

I felt that strength this past week when I was in so much pain. Several days this past week I felt as if I could not go on any longer with this protocol. I wondered if what I was doing was really going to be worth it. I prayed and read my scriptures diligently.

They answers did not come in a blaze of glory but rather one small piece at a time.  As I turned my heavy load over to the Lord, I have felt His help in my life each day this past week. He has helped and strengthened me to endure each day. He has sent tiny tender mercies to me to let me know I am not alone! He has lightened my load and replaced the frustration and pain with happiness and joy. I know that my redeemer lives and that He truly is my Savior and Redeemer. He knows exactly what I am going through and as I turn my struggles and pain over to Him , I have literally felt him carry them for me!

How grateful I am for my trials but also for the triumphs I gain because of my Heavenly Father and Savior Jesus Chrsit. I know I could never make it through this process without the Love of my Father in Heaven and without my Savior Jesus Christ's ability to lift me from my pain and suffering. I can testify the atonement is real and can help with whatever we need, any time, any place and with any thing…. All we need to do is ask! I promise He is there anxiously waiting to raise us up! 




Friday, May 22, 2015

It Might Be Hard…But it Will Be Worth It!

So today marked 20 days since I began the Marshall Protocol. I have had some pretty rough days and some okay days.

 I began this treatment in hopes of trying to rid my body of this disease. My doctor who suggested this protocol did a great deal of research before teaching me about it.  As his first patient on this treatment I have had to be I guess "his guniea pig."

On May 3, I began taking Telimisartan 80 mg. which caused some horrible intolerable flares in my body. I learned first hand to not take that much at one time. I then switched to 40mg 2 times per day. This still was not tolerable enough. So by the end of the first week which way May 3- 10. I was down to 20mg. 4 times a day. This was a much more tolerable dosing.

But we soon learned after talking to others who were on the Marshall Protocol that although Telimasartan is cheaper and in the same drug category it did not have any of the other benefits that Olmesartan had. I found out that my insurance would not cover Olmesartan but would cover Telimasartan, and since it was in the same drug class my doctor did some research and said it should be able to do the same thing.

Telimasartan cost me about $34.00 each month whereas Olemsartan would cost me $785.00 per month. WOW that was a huge cost difference so we thought we would try the cheaper one.

But once we did the research ourselves we learned from others on this protocol that we would be wasting precious time, money, and a great deal of useless pain and suffering by taking the wrong medication.

We also learned that Olem. has ingredients in it that protect your organs where Teli. does not. We also learned that Olem. had a great deal of anti-inflammatory medication that would help whereas Teli. does not. I knew after a great deal of research and prayer that I needed to get on the right medication and not try to do it with the cheaper one. I prayed so hard to be able to know where to find it both safe and affordable.

So the first week we searched and discovered the Marshall Protocol Facebook page. We learned where others on this same protocol purchased  Olem. that was both safe and effective. With the help of my doctor we were able to order it and have it shipped. So I have been waiting for over two weeks to begin Olemisartan.

TODAY I was so excited to receive it in the mail today. I began taking it immediately. I have been taking the Telimsartan up untill today because of the serious issues that could happen if I would have stopped it abruptly.

 I switched meds today and I have to say I was so excited to start taking something that could possibly get rid of this disease.  I was so happy to start taking the right meds that I even took a picture of me taking the fist as well as all the meds and sent them to my family!

I know it sounds absolutely crazy to have done this but I felt like today was going to be the first day of my healing journey! I know I have some pretty rough days ahead and I know it won't be easy but there is one thing I do know that IT WILL ALL BE WORTH IT!!!!


First one down the HATCH!!! haha




Sunday, May 10, 2015

Happy Mother's Day…. To all the special women in my life.

Happy Mothers Day to all the special women in my life!

Today I have reflected on the many blessings the women in my family have been in my life. They have made me who I am today. I have pondered on the many talents and traits I have received from my mother, grandmothers, and great grandmothers etc. Doing family history work and finding stories about them have shown me just how much we are really alike.

I am so honored to have so many strong, courageous, and amazing women from those who came before me. I would not be who I am today with out their examples. I am thankful to two specials grandma's who mean the world to me. They have always been so kind and caring and have shown me how to love and serve others in many different ways.

I miss my Grandma Rhea terribly as we lost her just over a year ago. I have so many special memories of her. She demonstrated such kindness and love to each one of her grandkids. We felt as if we were her most special grand-child because of the way she treated each of us.  I am currently working on her side of the family as I search our Danish ancestors. I have loved finding ancestors that we did not even know we had and as I do this I feel so close to her as I find and do their temple work.  I know she is up in heaven with her sweetheart and my brother as well as many other ancestors just waiting for us to find them and seal them together forever to our family. I know this will be a life long pursuit but I know I can do this even with this disease and am so grateful  for this opportunity in my life.

My Grandma Parry is in a care center as she broke her hip about a month ago. She is the only living grandparent I have left. She has suffered for many years with rheumatoid arthritis. She contracted this auto-immune illness in her forties, about the same age I got sarcoidosis.  Even when her fingers became so mis-shaped from this disease she still would find time to make a cake and visit those in need. She stayed physically active by swimming or riding her stationary bike well into her 80's in order to keep her disease from putting her in a wheelchair. As I have struggled this past year with my own pain and suffering, I think of her and know that if she can do it..SO CAN I!

My Mom has been not only an amazing mother, she has been one of my closest friends. Someone to laugh with, someone to cry with, and not to mention someone to vent to! Her love, kindness, and patience is something I adore and am so thankful for her amazing example. She puts everyone else before herself and demonstrates many "Christlike" qualities. She has the patience of Job as she has had to be a personal nurse to my father who has been a diabetic since he was 17. And that is not an easy task if you know my hardworking, overdoing father!

 I have enjoyed working this past year with my mom doing family history each week. It has been so much fun discovering and finding new ancestors and doing their temple work as well as learning their stories. I am the only daughter to my parents and feel so blessed to have been born into their family. I know these past two years have been difficult in regards to my health but my mom has always been there for me through it all. I love her to pieces and couldn't have asked for a better mother in my life.  Mom I love you!

My daughter Kaylee, became a mother about a year and half ago and will be mother to her second child in just a few weeks. How wonderful it is to watch your daughter become such an amazing mother and then to become a grandmother yourself. There is nothing better in this world then to be a part of such divinity as becoming  a daughter, granddaughter, mother and grandmother. This calling in life is part of God's eternal plan and family is the only things that provides more joy than any of us could ever imagine. I know rearing a family is the hardest thing you will ever do but by far the most rewarding!

Also a special shout out to my mother-in-law and the many sister-in-laws on both sides of my family! I love them all and the love and kindness they show in our behalf! Thanks for all you do to make our family complete!

I love the opportunity I have of being a part of God's plan and to have many special women in my life!


Shaniah, Kaylee, Me and Ireland and my Mom Cheryl

Mothers Day dinner with the Parry family
Lisa(my brother Shane's wife) Kaylee, Me, Cheryl(my mom) Elisha (my brother Kelly's wife)

My beautiful family minus C'Jay who is working in Arizona! 

Madison (J'Dees girlfriend) J'Dee, Irealand and Me, Kim, Niah, Kaylee, and Andrew…And baby #2 coming in three weeks!!!

I got to talk to C'Jay today and he sent me money for both Mothers day and my birthday since it was today as well. He told me I was to spend it on only my wants not my needs. He told me specifically to not spend it on my medications! haha! Boy my kids know me well!!!




Monday, May 4, 2015

LESSON LEARNED!!! :/

Today was day 2 on the Marshall Protocol. I took my 80mg telimasartan first thing this morning along with all my other supplements and within 90 minutes I was in so much pain and felt so extremely sick with fever, chills, and fatigue that I went right back to bed.

Once in bed I opened my laptop to read more about this Protocol. I was extremely concerned as to what I did wrong as I never expected this type of response this quickly.

 First I realized I should have taken a smaller dose to begin with because this drug is normally used for high blood pressure.  I have low blood pressure and I am not using the drug for that reason but for the Vitamin D receptors that attach to each cell and expose the bacteria or infection for your immune system to kill. As your immune system kills off the bacteria, something is release by your cells which create an  inflammatory response which then caused all my sarcs to flare up. Not only did I feel like I had the Flu but also like I was in a huge flare and in a lot of pain. Not to mention the extreme fatigue that set in. It was a very rough day but I learned really quick on what not to do today!!! hahah

I also learned that you should not take any other supplements or food that contains Vitamin D as that adds to your flare. (Which I already did this morning) I also quickly found out just how light sensitive you become on this protocol. I had read about it the day before but didn't even realize just how bad it could get. The Marshall Protocol Knowledge Base said it was mandatory to get special NOIR glasses for both inside and outside and that I would not even be able to handle fluorescent lighting. It also said I would need to cover up everything if I go outside as to not add to the vitamin D level in my body.

So today was defintley a learning lesson. I pulled out my regular glasses, darkened my room, and my sweet hubby ordered the NOIR glasses right away. In fact if you mention to the company that you are on the Marshall Protocol they will even give you a 50% discount.  Its a good thing because the glasses are expensive!!!

Thank goodness this pill only peaked for about 6-8 hours and then it started to calm down. But I can bet you tomorrow I will be cutting this dose in half. I also wondered why it did not effect me yesterday on my first day…. Once again as I combed the website I found out that the drug was more potent on the 2nd day than the first! haha! Wished I would have read the info before I experienced it! haha

So today was defintely a LESSON LEARNED!

Sunday, May 3, 2015

Day 1 of Marshall Protocol & Happy Birthday Bubba!

Today my husband asked the kids to fast as a family to help me while as I begin this new protocol.
I am really excited about starting something that could heal this disease but at the same time it makes me really nervous.

So today after church while still fasting I had a prompting to do some research on this new Marshall Protocol that I would start today. I took my first 80 mg.pill today right after church and other than sleeping for 4 hours I felt no other side effects other than being dizzy and lightheaded.


We had family dinner together and celebrated my son-in-laws birthday today as well as Shaniah's. It was so fun and then we  had FHE. We enjoyed the night together and I especially loved having everyone there, even C'Jay my son who is working in AZ for the summer face timed us during FHE and we all enjoyed catching up with him. He misses us but most of all he misses Ireland.

He is finding a great deal of success in AZ already and is super excited to earn as much as he can selling Vivint and then back home in August.

So thankful for the fast today and looking forward to outcome of this new medication on the Marshall Protocol will bring.
We are so grateful to have such a wonderful son-in-law in our family. He is so amazing to our daughter and treats her like a queen. He is also the best dad to Ireland. He plays so cute with her and works so hard to take care of them both. We are so grateful for his willingness to always help us with whatever we need and has always been there for all of us through my illness. I am so thankful for him and the wonderful person he is in our families lives. We love you Bubba! You're the best!


Friday, May 1, 2015

HAPPY 17th B-DAY NIAH!

Today is May 1 2015. It has been 17 years since my baby girl was born. Time has flown by so fast that I can't even imagine she only has one year left in high school and then she will be spreading her wings getting ready to fly on her own.

She is our last child and just thinking about her leaving makes me sad and I know I will have empty nest syndrome once she takes flight. But at the same time it so exciting to see her make those choices that will determine the rest of her life.

But for now I will enjoy every minute I have with her. She has become such an amazingly strong, spiritual, young woman this past year. I have watched her develop and become so beautiful both inside and out. She is truly ones of God's special daughters! She has become so mature and such a leader to all all her friends. I am truly blessed to have been entrusted by our Heavenly Father to have had the privilege along with my husband to have her in our family!

The Lord knew I would need a strong sprit to help me through these last couple years and boy is she ever so compassionate, caring, and most of all tough! She inspires me each day to take care of myself. She told me the other day that since I have to be down again with this new treatment that she will take over as woman of the house and whip her dad and older brother into shape! We laughed together but come to find out she was dead serious!! haha! She told me that I have to back her up in this role! LOL!

I am so grateful for this 17 year old sweetheart and I made her a slideshow for her birthday today! We also had a surprise birthday party for her.  We planned it with her best friend Sammy. It was such a success. We had over 12 pizzas and 100 cupcakes and they were all gone by the end of the party.  We must have had over 150 kids coming and going all night! The kids loved swimming, hot tubbing, and hanging out around the fire pit listening to music. It was quite the noisy party but such a fun time for good kids to come to a safe place to have so much fun!

Niah was so thankful for this party and couldn't thank us enough! It was all worth it to see the surprise on her face when all of her friends came to wish her a happy birthday!




These are some of her pictures that I put in the slideshow from her Junior year. 
Shaniah kept extremely busy from dances, to swim, to lacrosse,  to powder puff football and basketball. She loved every minute of it and I had so much fun just watching her go!!
























LOVE THIS GIRL!
HAPPY 17th BIRTHDAY NIAH!