Hello everyone!
I bet you are wondering where I have been these past few weeks. I woke up this morning realizing that is has been about 4 weeks since I have posted. I felt horrible about this because I know how much writing on this blog helps me and I can only hope it can help others as much as it has helps me. When I am having rough pain days I seem to go back to my old posts and find peace and hope and a greater determination to do hard things!
This past month I have filled my life with taking care of my family; from helping my very pregnant daughter who is due in 4 weeks and her 18 month old baby, helping my other teenage daughter with her school dances', going to her lacrosse games and taking pictures and videos for her and the team, as well as preparing for her surprise birthday party, doing family history, teaching young women's, helping my son move to Arizona and just trying to be there for everyone and everything else has seemed to take up most of my time.
Although I have been very busy I have seemed to still have flares each time I push past the limits my body can handle. So after each event I could just plan on a flare that would last from 1-3 days. I would justify having this flare by saying, "It was worth it." As a mother and grandmother I never want to miss anything and I find myself doing whatever it takes in order to be a part of each and everyones life no matter what the consequences I have to deal with!
GOOD NEWS today I went to my doctor to get my 3 months blood tests level checked. We have been waiting for my vitamin D level to drop low enough for me to be able to start the Marshall Protocol. Click on this link to learn more about this protocol. THE MARSHALL PROTOCOL This protocol has actually healed or improved people with sarcoidosis and now many other auto-immune diseases.
Dr. Stuart Porter, my doctor from Provo Utah, has been researching the Marshall Protocol for over 9 months now and I believe I am his first patient to try this protocol. I met with him today and he told me that the medication I would be starting is called Telimisartan and is a blood pressure lowering medication. Although I already have low blood pressure he said it could make me light headed, dizzy, or pass out. But he said he was more worried about he bad flare ups it would cause as I take this medication.
The main reason for taking this medication is not for blood pressure but it has something in this drug that attaches to each vitamin D receptor on each of my cells in my body and allows the cell to open up and uncover the hidden infection in each of my cells which caused sarcoidosis in the first place. He said as it does this my immune system will go to war trying to kill the bacteria being released. As the bacteria is being killed by immune system it will cause my granulomas in my lungs and lymph nodes to enlarge and cause even more painful flares. He said this protocol should take anywhere from 2-5 years but it could heal this disease if I am patient and endure it well.
So I am excited to try this new treatment as this gives me great deal of hope for the future….but tomorrow is my daughter 17th surprise birthday party and I don't want to be sick. So I will start the drug on Sunday when my family is around to support me.
Little nervous to start but excited for the healing process to begin!!
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