I am Back and Beginning the Marshall Protocol

Hello everyone!
I bet you are wondering where I have been these past few weeks. I woke up this morning realizing that is has been about 4 weeks since I have posted. I felt horrible about this because I know how much writing on this blog helps me and I can only hope it can help others as much as it has helps me. When I am having rough pain days I seem to go back to my old posts and find peace and hope and a greater determination to do hard things!

This past month I have filled my life with taking care of my family; from helping my very pregnant daughter who is due in 4 weeks and her 18 month old baby,  helping my other teenage daughter with her school dances',  going to her lacrosse games and taking pictures and videos for her and the team, as well as preparing for her surprise birthday party, doing family history, teaching young women's, helping my son move to Arizona and just trying to be there for everyone and everything else has seemed to take up most of my time.

Although I have been very busy I have seemed to still have flares each time I push past the limits my body can handle. So after each event I could just plan on a flare that would last from 1-3 days. I would justify having this flare by saying, "It was worth it." As a mother and grandmother I never want to miss anything and I find myself doing whatever it takes in order to be  a part of each and everyones life no matter what the consequences I have to deal with!


  GOOD NEWS  today I went to my doctor to get my 3 months blood tests level checked. We have been waiting for my vitamin D level to drop low enough for me to be able to start the Marshall Protocol. Click on this link to learn more about this protocol. THE MARSHALL PROTOCOL This protocol has actually healed or improved people with sarcoidosis and now many other auto-immune diseases.

 Dr. Stuart Porter, my doctor from Provo Utah, has been researching the Marshall Protocol for over 9 months now and I believe I am his first patient to try this protocol. I met with him today and he told me that the medication I would be starting is called Telimisartan and is a blood pressure lowering medication. Although I already have low blood pressure he said it could make me light headed, dizzy, or pass out. But he said he was more worried about he bad flare ups it would cause as I take this medication.

The main reason for taking this medication is not for blood pressure but it has  something in this drug that attaches to each vitamin D receptor on each of my cells in my body and allows the cell to open up and uncover the hidden infection in each of my cells which caused sarcoidosis in the first place. He said as it does this my immune system will go to war trying to kill the bacteria being released. As the bacteria is being killed by immune system it will cause my granulomas in my lungs and lymph nodes to enlarge and cause even more painful flares.  He said this protocol should take anywhere from 2-5 years but it could heal this disease if I am patient and endure it well.

So I am excited to try this new treatment as this gives me great deal of hope for the future….but tomorrow is my daughter 17th surprise birthday party and I don't want to be sick. So I will start the drug on Sunday when my family is around to support me.
Little nervous to start but excited for the healing process to begin!!

Bringing Back the 80's…

Today was a very fun day. Shaniah's school had their MORP dance tonight. Niah and her friend had asked a date to the dance and needed 80's clothes to wear for tonight. Niah and Sammy wanted to be 80's rockers but had not found time to get the stuff they needed. 

So they asked Kim and I to go shopping for them and there dates. We went to the mall and found an old 80's store and some black leather clothes on the clearance rack and old rocker t-shirts. We then found a .99 jewelry store where we loaded up on big necklaces and earrings that looked 80's. 

Kim and I laughed so hard as we re-lived our 80's  teenage years.  When we showed the girls and their dates they laughed so hard and all went to town dressing up. By the time we got them out the door they all looked like some pretty hard-core 80's rock band! They had so much fun at the dance and were so thankful for what we found for them that the girl asked to take a picture with me and gave me huge hug of thanks for the fun stuff!

I was also asked to take pics of the entire group before they left for dinner…boy you can sure tell who are the rockers from the neon group!! haha 

After the dance we had the group back at our house for swimming, hot-tubbing, and hot-fudge sundaes. Such a fun way to end the group date!

Not only did the girls have fun but so did we!!!  Bringing back the 80's and sharing with the kids was so much fun tonight!

MY FAVORITE PICTURE!!

LOVE THESE TWO GIRLS!

CRAZY KIDS!

FIRST FACE-TIMING WITH LANDEE

After a rough pain day, tonight my grand baby decided to FaceTime Kim and I for the first time. Although they only live 7 minutes away from us, Ireland wanted to see her grandma and grandpa. She could not understand how she could see and hear us on the phone but not be able to touch us. haha

Here are a few cute pics from our FaceTiming tonight!

MY FAVORITE ONE!